Because of your Jeans for Genes donations, The Jeans for Genes Grant Programme has awarded 21 charity partners with funding to help them provide vital support to individuals and families living with a genetic condition in the UK

Because of your Jeans for Genes donations, we were able to provide unrestricted funding to 18 charities providing vital support to those living with a genetic condition in the UK

This year, because of your Jeans for Genes donations, we were able to fund 23 charities providing vital support to those living with a genetic condition in the UK during the coronavirus pandemic.

In 2019, because of your Jeans for Genes donations, we were able to support 22 charity partners with funding to run crucial projects improving the lives of individuals and families living with a genetic condition

Our funding partner, Annabelle’s Challenge, aims to promote awareness and medical research into the rare, life-threatening and incurable genetic condition Vascular Ehlers-Danlos Syndrome (vEDS).

Our funding partner, DBA UK provides support and information for those with the rare genetic blood condition Diamond Blackfan Anaemia (DBA), and their families.

Our funding partner, the Duchenne Family Support Group (DFSG) supports people with Duchenne Muscular Dystrophy and their families. They provide a free helpline, information, quarterly newsletters, days out and subsidised holidays.

Our funding partner, The Myotubular Trust supports and helps families at various stages of living with the rare conditions myotubular and centronuclear myopathy.

Trigger warning: this article contains a parent’s personal account of child loss.

“We couldn’t call our baby anything other than Hope,” Beth, from Aldershot, Hampshire

Our funding partner, SOFT UK provides support and information for families of children with the genetic conditions Trisomy 13 (Patau’s syndrome) and Trisomy 18 (Edwards’ syndrome).

Our funding partner, PMSF UK provides a supportive, inclusive community for families affected by Phelan-McDermid Syndrome (PMS), a genetic condition which affects speech, cognitive development and mobility.

Over the last 14 years, Newlife has received over £58,000 from funds raised on Jeans for Genes Day to help them provide specialist disability equipment to children living with a genetic condition.

Monies raised on Jeans for Genes Day funded Oily Cart, a theatre company, to visit special schools with a production that involved tactile and multi-sensory activities.

Jeans for Genes Day funded a summer camp for the Scottish Huntington's Association for young people affected by Huntington's disease.

Rhys Evans hit the headlines in 2002 as the ‘bubble baby’, a child with no immune system, whose life was saved by pioneering gene therapy partly funded by monies raised through Jeans for Genes. Rhys is now 19 and has been able to live a full and active life.

Seven year old Josh has Norrie disease, a genetic disorder that has caused him to be blind from birth as well as him currently losing his hearing