Born to Run
Jeans for Genes Head of Operations Doron Kristal is taking part in his 20th marathon! Here he shares an insight into his training journey and the joys of balancing training with work and home life.
I feel I can help children in need with my design
This year’s Jeans for Genes fashion tee was designed by Chunchen Liu, a Masters in Illustration student at Kingston University. Chunchen talks about the inspiration behind the design that takes a pile of jeans, thread and a rivet to form the pattern and twist of a DNA double helix.
Because I looked different
Jeans for Genes ambassador, Dr Oscar Duke was born with the genetic condition Albinism. On International Albinism Awareness Day, Dr Oscar Duke tells his personal story and those of others who face discrimination and persecution for living with albinism and shares his dream of a world filled with support and understanding.
On Being a Rare Dad
This Father’s Day, Chris Bedford-Gay of FOP Friends writes a heartfelt ode to being a “Rare Dad” - a father to a child living with a rare genetic condition.
I Used to Think ‘Why Me’
18 year old, Jeans for Genes ambassador Ashley Carter who is affected by Treacher Collins Syndrome tells his story of how he was bullied at school and how he found hope through his family and a new campaign.
I wish someone had told me…
Writer and Campaigner, Stephanie Nimmo recently penned a heartfelt memoir “Was this in the Plan?” about caring for her young daughter Daisy who was diagnosed with a rare genetic condition, Costello syndrome. Sadly, Daisy passed away in January 2017 at the age of twelve. Here, Stephanie shares her first-hand experience and writes a guide for mothers who are newly embarking on the complex needs journey with their recently-diagnosed children.