Make a donation, make a difference

Every penny you give helps transform the lives children affected by genetic disorders

Your donations will fund the care and support children, and their families need today.







  • £10 will pay for 60 minutes of specialist telephone advice for parents caring for a child with severe neurological genetic conditions.  
  • £50 will pay for a mother to attend a support day, giving her the help she needs to care for an extremely rare and profoundly disabling genetic condition.
  • £100 will help fund an educational booklet, helping teachers to maximise opportunities available to children with inherited learning disabilities.
  • £150 will pay for one child carer to enjoy a summer camp, enabling them to meet others in a similar situation, share experiences, reduce feelings of isolation and giving them some much needed fun
  • £250 will help fund a website where children affected with sex development disorders can obtain information and support, without the need to disclose their identity
  • £500 will pay for 5 families, affected by profound disabilities, to enjoy an adaptive skiing session, where they can have fun, build confidence and friendships with others in similar situations.  
  • £1,000 will help fund a film for teenagers with cystic fibrosis, helping them to come to terms with, and encouraging them to begin to take responsibility for, their condition.
  • £2,000 will help fund a sensory toy warehouse for children with a rare premature aging disorder, enhancing their senses and providing parents with a way to fun and pleasurable way to engage with their child who might otherwise have limited ways of interacting.

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